Learn more about results and findings from studies, surveys, focus groups and other research conducted by Living Beyond Breast Cancer.
Left Behind: Key Findings From Living Beyond Breast Cancer’s National Needs Assessment of Women With Triple-Negative Breast Cancer
Women diagnosed with triple-negative breast cancer, or TNBC, report higher levels of fear, worry and anxiety than women with other breast cancer subtypes, from diagnosis through the post-treatment period. That was among the findings of Living Beyond Breast Cancer’s National Breast Cancer Needs Assessment, which identified this difference and several other key findings specific to women with triple-negative disease.
Emotional and Psychological Characteristics of Women with Triple-Negative Breast Cancer: Do Socioeconomic, Demographic, and Provider Variables Impact Emotional Change from Diagnosis to Post-Treatment?
Women with triple-negative breast cancer experience greater fear, anxiety and worry than women with non-TNBC subtypes at all points from diagnosis through post-treatment. While women with all breast cancer subtypes report a reduction in negative emotion over time from treatment to post-treatment, this change is less profound in TNBC women and appears to be driven almost entirely by concern about the disease.
Education and Information Preferences for Women with Triple-Negative Breast Cancer: Should Personal or Medical Demographic Variables Impact Program Tailoring?
Education and information tailoring preferences differ by breast cancer subtype. Women with TNBC strongly prefer education and information tailored to their breast cancer subtype and their race/ethnicity, but they are less interested in cancer stage or living situation-specific tailoring.
Ten percent of breast cancer cases occur in women under 45 years old. Although younger women are less likely to be diagnosed, their survivorship needs can differ, making breast cancer a significant public health concern for women in this age group. To address this need, Living Beyond Breast Cancer developed new national programming for young women, after conducting a comprehensive needs assessment and selecting program priorities based on assessment findings. This project was funded through a cooperative agreement with Centers for Disease Control and Prevention.
Using a Financial Assistance Program as a Gateway to Support and Education for Underserved Breast Cancer Survivors
The Cis B. Golder Quality of Life Grant at Living Beyond Breast Cancer helps with the invisible costs of breast cancer treatment and provides a unique opportunity to engage underserved people diagnosed with breast cancer who may not otherwise have sought support and education from an organization. 65% of grant applicants were previously unaware of LBBC and its other programs. Formalized interventions were developed to increase contact time with grant recipients and provide personalized invitations to participate in other programs offered by LBBC.
Defining the Unique and Persistent Needs of Young Women Living with Metastatic Breast Cancer through a Multi-Phased Needs Assessment
In spring 2012, Living Beyond Breast Cancer conducted a comprehensive assessment to identify the needs of women diagnosed with breast cancer younger than age 45. As part of the analysis, LBBC compared the differences between the respondents diagnosed with metastatic breast cancer (MBC) and those diagnosed with early-stage breast cancer (EBC) to determine how LBBC can better tailor programs to meet the needs of young women living with MBC.
Key Findings from Living Beyond Breast Cancer’s National Needs Assessment of Young Women Affected by Breast Cancer
This executive summary presents key findings of our Young Women's Initiative's national needs assessment of young women affected by breast cancer.
Developing Culturally Relevant Breast Cancer Resources: Creating Getting Connected: African-Americans Living Beyond Breast Cancer
In 1997, in response to a needs assessment of African-American women affected by breast cancer, Living Beyond Breast Cancer developed the educational booklet, Getting Connected: African-Americans Living Beyond Breast Cancer. Due to changes in breast cancer treatment, cancer disparities and perceptions of breast cancer, Getting Connected was revised in 2010.
Silent Voices: Information, Support & Practical Services Needs for Metastatic Breast Cancer Patients
In 2005, Living Beyond Breast Cancer developed a 64-question survey to assess the needs of women living with metastatic breast cancer, with the goal of filling gaps in programs and services targeted to this underserved population. In 2008, the same survey was conducted using only the paper format to test these observed differences and to promote increased participation among non-Internet users.
Silent Voices: Women with Advanced (Metastatic) Breast Cancer Share Their Needs and Preferences for Information, Support and Practical Resources
This extensive report contains findings from a 2005 survey of 618 women living with stage IV (metastatic) breast cancer. It offers insights and direction on the information, support and practical needs of women living with advanced disease.