Welcome to the Living Beyond Breast Cancer library. Here you can access a user-friendly collection of LBBC resources to address your medical, psychosocial, emotional, legal and financial concerns.
Whether you are newly diagnosed, recently completed treatment, are years beyond or are living with advanced (metastatic) disease, or you are a family member, friend or healthcare provider, LBBC can connect you with trusted breast cancer information and a community of support.
We hope the information offered in this collection will help you along your breast cancer journey. If you'd like to order books and resources found in this collection, visit our online marketplace.
Learning about Breast Cancer
Here are some recommended resources to get you started:
What You Need to Know
This guide will help you discover how to communicate with your breast cancer care team about your sexual orientation or gender identity in ways that are most comfortable to you. Learn about the resources available to you online and at many cancer treatment centers, and get tips on deciding when, and if, to come out to your providers.
This guide will help you gain useful knowledge about some of the most common complementary therapies available, such as acupuncture, meditation, tai chi, reiki and others. Learn what symptoms and side effects each therapy may help ease and the level of scientific evidence available for each practice. Get practical advice about where you can access them, what to look for in a trained professional, and where to find other resources for trusted information.
Most, if not all, cancer treatments have some kind of side effect. And, living with metastatic breast cancer means being in treatment long-term. Managing the side effects of the treatments you need is an important part of living well with metastatic disease.
This March, Living Beyond Breast Cancer expert Evelyn Robles-Rodriguez, RN, MSN, NPC, AOCN answered your questions about what side effects you may experience, how to handle them, what to do if a side effect becomes too much and what your healthcare team can do to help.
Not everyone has a big support system to lean on after a breast cancer diagnosis. Whether you are living alone, living far from friends and family, or simply keep only a small circle of close friends, you may find that you have to care for yourself more often than others. Still, there may be moments when having a stronger support system could be useful.
This February, Living Beyond Breast Cancer expert Christina Bach, MBE, MSW, LCSW, OSW-C answered your questions about how to juggle everyday life with cancer treatment when you are your own caregiver; what kinds of professionals your treatment center may have to help you; and where to find the support you want.
It’s important that you feel comfortable with your doctors and their recommendations. Whether you want to know about other treatment options, feel more comfortable discussing side effects or simply feel your team isn’t the right fit for you, getting a second opinion may help. This January, Living Beyond Breast Cancer expert Paul B. Gilman, MD, answered your questions about when it’s best to ask for a second opinion, how to go about getting one, what to do if your health insurance restricts who you can see for treatment and how to talk to your current team about your desire to seek more information from others.
Check out the new look of Insight, LBBC's quarterly national newsletter, in this Spring 2015 issue. This issue contains features on chemobrain, a side effect that impacts memory and thinking; talking about cancer-related sex and intimacy concerns with your partner and how to get help from your care team; and the stories of two LBBC Young Advocates, women diagnosed under the age of 45 who have been trained to advocate in their communities through our Young Women's Initiative. Hear from LBBC CEO Jean Sachs, MSS, MLSP, on our new logo and look. Stay updated on LBBC's programs, resources and what's happening on the web.
In this issue of Insights on Metastatic Breast Cancer, learn about the process of applying for disability benefits after a stage IV diagnosis and read the stories and advice of women who have applied in the past. Experts share tips for making your application as strong and thorough as possible.
Get to know Ayanna Kalasunas, an LBBC Hear My Voice blogger and speaker at the 2015 Annual Conference for Women With Metastatic Breast Cancer, about marrying in the midst of a diagnosis.
Emotional and Psychological Characteristics of Women with Triple-Negative Breast Cancer: Do Socioeconomic, Demographic, and Provider Variables Impact Emotional Change from Diagnosis to Post-Treatment?
Women with triple-negative breast cancer experience greater fear, anxiety and worry than women with non-TNBC subtypes at all points from diagnosis through post-treatment. While women with all breast cancer subtypes report a reduction in negative emotion over time from treatment to post-treatment, this change is less profound in TNBC women and appears to be driven almost entirely by concern about the disease.
Education and Information Preferences for Women with Triple-Negative Breast Cancer: Should Personal or Medical Demographic Variables Impact Program Tailoring?
Education and information tailoring preferences differ by breast cancer subtype. Women with TNBC strongly prefer education and information tailored to their breast cancer subtype and their race/ethnicity, but they are less interested in cancer stage or living situation-specific tailoring.