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Tips for Communicating With Others

I found the nonprofit site,, very helpful. I used it to update family and friends on what was going on with my diagnosis and treatments, and it allowed me to focus on my family at night instead of spending time on the phone updating friends on what was happening.

Stand fast with your wants and your needs: It’s your body and your life.

Using email to provide updates to family, friends and co-workers is useful because it helps reduce the number of times you have to repeat your story.

Learn to say “no” if you haven't already done so.

Be gentle, but firm, with your parents. This is hitting them hard, too.

Communicate with friends through e-mail. You can respond at all sorts of odd hours without waking anyone!