Additional Resources
Web Link Categories
- Advanced Breast Cancer
- Advocacy
- African-Americans
- Appearance Products
- Asian Americans
- Caregivers and Family
- Clinical Trials
- Complementary and Alternative Approaches
- Financial Support
- General Breast Cancer Information and Support
- General Cancer Information
- General Health Information
- Healthcare Professionals
- HER2-Positive Breast Cancer
- High Risk
- Home Care Services
- Inflammatory Breast Cancer
- International
- Latinas
- Lesbians
- Lodging
- Male Breast Cancer
- Native Americans
- Philadelphia Regional Resources
- Quality of Life
- Recommended Reading
- Reconstruction
- Resource Directories & Healthcare Search Engines
- Retreats
- Side Effects
- Survivorship
- Testing
- Treatments
- Triple-Negative Breast Cancer
- Workplace, Legal and Insurance Resources
- Young Women Affected by Breast Cancer
Web Links
Advanced Breast Cancer
www.advancedbc.org
Managed by Musa Mayer, an author and patient advocate, AdvancedBC.org offers online and printed resources for people living with advanced (metastatic) disease.
AdvancedBreastCancerCommunity.org
www.advancedbreastcancercommunity.org
Living Beyond Breast Cancer is a partner in this website, which brings together organizations and resources focusing on metastatic breast cancer. This site will guide you to information and support that will empower you to take an active role in your treatment and care and connect you with others with a similar experience.
www.bcmets.org
BCMets.org offers advanced (metastatic) breast cancer information and support.
www.brainmetsbc.org
This website offers women with metastatic breast cancer and their families a place to learn about brain metastases from a patient perspective. BrainMetsBC.org is a source for the latest information about this form of the disease, as well as for personal stories from women who’ve been there about what it’s like to be diagnosed and treated for "brain mets."
galtogalwalk.org
A worldwide virtual community walking across America to raise funds for women living with advanced breast cancer. All proceeds go to the Gal to Gal Foundation, a 501 (c)(3) nonprofit charitable organization whose resources are dedicated to those living with metastatic disease.
www.getpalliativecare.org/home
Valuable information for patients and families coping with serious, complex illness including a palliative care Provider Directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organizations and more.
Making Memories Breast Cancer Foundation
www.makingmemories.org
(503) 491-8091
The mission of the Making Memories Breast Cancer Foundation is to grant wishes, including memory-making events, for women living with metastatic breast cancer, while continuing to support, educate and increase resource awareness.
www.metacancer.org
The MetaCancer Foundation provides resources and support for metastatic cancer survivors and their caregivers.
Metastatic Breast Cancer Network
www.mbcnetwork.org
(888)500-0370
Metastatic Breast Cancer Network (MBCN) is a national independent advocacy group of and for people with metastatic breast cancer. The MBCN intends to give metastatic breast cancer patients a greater voice in the breast cancer community.
www.metavivor.org
(410) 263-3340
The mission of METAvivor is to support research with the ultimate goal of transitioning metastatic breast cancer from a terminal condition to a controlled, chronic disease; to offer a face-to-face support program to persons with metastatic breast cancer living in the Annapolis, Maryland area; to offer advice to persons in other locations who wish to start their own metastatic breast cancer support programs; and to raise public awareness of this often unrecognized and unsupported condition.
Advocacy
www.bcaction.org
(877) 278-6722
Breast Cancer Action carries the voices of people affected by breast cancer to inspire and compel the changes necessary to end the breast cancer epidemic.
Breast Health Access for Women with Disabilities
www.bhawd.org
(510) 204-4866
Mission: To increase the access of women with disabilities to breast health information, screenings and early breast cancer detection
National Breast Cancer Coalition
www.stopbreastcancer.org
(800)622-2838
NBCC is a grassroots advocacy effort with the mission of eradicating breast cancer through action and advocacy.
National Coalition for Cancer Survivorship (NCCS)
www.canceradvocacy.org
(877) NCCS-YES
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care.
www.researchadvocacy.org
(877)276-2187
The Research Advocacy Network works to bring together all participants in the medical research process for education, support and connecting patient advocates with the research community to improve patient care.
www.standup2cancer.org
The purpose of this group, a collaboration of the Entertainment Industry Foundation and the American Association for Cancer Research, is to establish and support a focused and intense effort to effect changes in cancer research as quickly as possible. This site tells you about the group's efforts, the research it hopes to carry out and how you can help.
www.breastcancerfund.org
(415) 346-8223
In response to the public health crisis of breast cancer, the Breast Cancer Fund identifies – and advocates for elimination of – the environmental and other preventable causes of the disease. Founded in 1992, the Breast Cancer Fund works from the knowledge that breast cancer is not simply a personal tragedy, but a public health priority that demands action from all.
The Patient Advocacy Coalition
www.npaf.org
(202) 347-8009
National Patient Advocate Foundation is a national non-profit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels.
African-Americans
African American Breast Cancer Alliance
www.aabcainc.org
(612) 825-3675
The AABCA is dedicated to providing hope, awareness, education, emotional and social support to breast cancer survivors, their family members and the community. Information and action is particularly important because Black women tend to have more aggressive breast cancers at younger ages and benefit from earlier detection and aggressive treatments.
Black Women's Health Imperative
www.blackwomenshealth.org
(202) 548-4000
The Black Women's Health Imperative (Imperative) is the only organization devoted solely to advancing the health and wellness of America's 19.5 million Black women and girls through advocacy, community health and wellness education and leadership development.
www.iccnetwork.org
(713)798-4617
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
Making the Journey: Breast Cancer
www.shecircle.org
(202) 332-5536
As the first national health education program focused on African American women who partner with women, the local S.H.E. Circles provide a safe space where African American lesbian and bisexual women can learn about health issues, ask questions, share information, connect with resources, and provide support to each other.
National Cancer Institute - Portal on Cancer Health Disparities
www.cancer.gov/health-disparities
(800)4-CANCER
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
Philadelphia Black Women's Health Project
www.blackwomenshealthproject.org
(215) 232-1115
The Black Women’s Health Alliance (BWHA), established in 1983 as the Philadelphia Black Women’s Health Project, is a private nonprofit community-based organization that defines, promotes, and maintains the physical, mental, social and spiritual well-being of African-American women, women of color and their families.
www.sistersbychoice.net
(770) 987-2951
The Vision of Sisters…By Choice, Inc. is to be a leading provider of innovative programs and efforts that increase breast cancer education and awareness, to deliver detection and treatment services, especially to the underserved and at-risk population; and to provide support and counsel to individuals diagnosed with breast cancer and their families.
www.sistersnetworkinc.org
(866)781-1808
Sisters Network Inc. is committed to increasing local and national attention to the devastating impact that breast cancer has in the African-American community.
mdanderson.org/departments/spirit/
(800) 392-1611
Sisters Peer Counseling in Reproductive Issues after Treatment (SPIRIT) is a research study to determine whether peer counselors can help African-American breast cancer survivors by providing information, support and encouragement. SPIRIT is a partnership between M. D. Anderson and Sisters Network®, Inc. It is funded by the National Cancer Institute.
The Denise Roberts Breast Cancer Foundation
www.tdrbcf.org
(888) 833-6473
The Denise Roberts Breast Cancer Foundation (TDRBCF) is a 501 (c) – (3) nonprofit organization, which exists to change the consciousness of women and men of color, to one of health and self-awareness. TDRBCF exists to change the perception of breast health awareness to one that has little to do with age or gender - to one of understanding that acts as a mighty bridge over troubled waters. We strive to touch the underserved community in a way that replaces fear with knowledge and empowerment.
www.acrc.uams.edu/patients/witness_project
(800) 275-1183
The Witness Project is an educational and outreach program of the Winthrop P. Rockefeller Cancer Institute’s Cancer Education Department. It is a culturally competent, community-based, breast and cervical cancer education, outreach program, through which cancer survivors and lay health advisors increase awareness, knowledge, access to screening, and early detection in the African American population in an effort to reduce mortality and morbidity from cancer.
Appearance Products
www.adaptions4u.com
(580)226-3818
Offers a variety of hats, headwear and wig options for people experiencing chemotherapy hair loss. Headwear selection includes many styles of hats, turbans, scarves and sleep caps. Items are available in many colors and flattering designs.
www.us.amoena.com
(800) 926-6362
Amoena is recognized as the world's leading brand of external breast forms and post-mastectomy bras. Amoena products have been helping women to pursue the lifestyle they choose with confidence, security and comfort for more than 25 years. Amoena has become the first and only company to introduce lightweight breast forms in the color Tawny to meet the needs of African-American breast cancer survivors. Contact Ameona for retailers near you.
Amoena Post-Operative Products
www.amoena.com/us/Products/Postoperative/
(800) 926-6362
Amoena provides a special breast form and skin-friendly lingerie especially designed to protect sensitive skin areas after breast surgery and radiation therapy.
www.4women.com
(941)361-2408
Head scarves designed specifically for hair loss due to chemotherapy, alopecia or other medical conditions. Maintain your style and femininity with these unique, fashionable and versatile options.
www.bellabandanas.com
A line of custom designed Swarovski crystal accessories.
Breast Cancer Network of Strength Wig and Prosthesis Bank
www.networkofstrength.org/programs/wig-prosthesis-bank.php
(800) 221-2141
Network of Strength provides wigs and prostheses free-of-charge for women with limited resources. Most colors and styles are available and we make every effort to ensure that women receive their first choice. Also accepts donation of new or gently used wigs and prostheses.
www.contourmed.com
(888) 301-0520
ContourMed, Inc., was founded in 1998 to advance technology developed at one of the world's leading cancer research and treatment centers. ContourMed manufactures and distributes an innovative new anatomically accurate breast prosthesis. The mission of ContourMed is to improve the quality of life of breast cancer survivors and all women they serve by harnessing modern technology, producing innovative high quality products, and achieving excellence in client satisfaction and customer service. Contact ContourMed for retailers throughout the USA.
www.domadesigns.com
(888)603-1206
Exclusively designed hair loss hats and cancer caps for women, men and children experiencing hair loss. All products are made with carefully selected materials to provide the utmost comfort, style and elegance.
www.girlonthego.biz
(800)355-6976
Shop for a wig in your own home. Private appointments. Offers lightweight, breathable, synthetic and human hair wigs in multiple styles or custom cut to recreate your current hairstyle.
www.headcovers.com
(800)264-HATS
Specializes in hats, turbans and other headwear for hair loss and cancer patients. Products include specially designed stylish hats, turbans, wigs, cotton hats, swim caps, scarves and much more.
www.heartofgoldwigs.com
Devoted to the needs of women experiencing medical hair loss. Extensive line of wigs, headwear and care products. Provides helpful advice on selecting wigs and headwear; information on medically-related hair loss, what to expect before, during and after treatment and additional resources.
www.hatswithhair.com
(877)447-4287
Provides you with the best quality hats to help you with hair-loss needs. Multiple styles and colors available!
Ladies First for Prosthetic Camisole
www.ladiesfirst.com
(800)497-8285
Offers unique alternatives to traditional post mastectomy products. Hopes to empower and encourage women to return to their active lifestyle with confidence.
www.locksoflove.org
(888) 896-1588
Non-profit organization that provides hairpieces to financially disadvantaged children 18 years and younger suffering from long-term medical hair loss.
www.lookgoodfeelbetter.org
Non-medical, national public service program to help women offset appearance-related changes from cancer treatment. Offers a free program that helps improve self-image, appearance and quality-of-life of people undergoing cancer treatment.
purestylegirlfriends.com
(323) 234-1495
Pure Style Girlfriends fashion solutions provide women with a healthy, simple and inexpensive way to have Hollywood glamour like the stars and instant gratification. Their products offer women a hassle-free alternative to surgery and include everything that goes under your clothes to keep you looking your best.
www.softeeusa.com
(866)605-8585
Provides Internet access to the products women need for comfort and confidence after breast surgery. High quality and durable garments offer ongoing comfort, support and confidence for a lifetime.
www.healingthreads.com
(877) 647-3900
The Original Healing Threads hospital gown collection is a sophisticated, dignified and comfortable line of recovery wear and adaptive clothing that was specifically designed to be worn during and after medical treatments. The complete line of stylish hospital gowns and coordinating pants brings fashion and function together to make your recovery experience as comfortable and dignified as possible.
www.tlcdirect.org
(800)850-9445
A not-for-profit patient service of the American Cancer Society intended to make coping easier for women experiencing hair loss due to chemotherapy, radiation treatment or surgery. In addition to helpful editorial advice for experts at the American Cancer Society, TLC offers a large selection of hair loss products for cancer patients, as well as special products for breast cancer patients and survivors.
www.tolife.org/wigs.html
(518)439-5975
Offers extensive line of products and support services to assist women coping with hair loss. Staff and volunteers include breast cancer survivors and professionals dedicated to meeting your needs.
Asian Americans
www.aancart.org
AANCART seeks to build partnerships to increase cancer awareness, to promote greater accrual of Asian Americans in clinical studies, to increase training opportunities for Asian Americans and to develop pilot programs in four targeted regions: Los Angeles, New York, San Francisco and Seattle.
www.aapcho.org
(510)272-9536
The Association of Asian Pacific Community Health Organizations (AAPCHO) is a national association representing community health organizations dedicated to promoting advocacy, collaboration and leadership that improves the health status and access of Asian Americans, Native Hawaiians and Pacific Islanders within the United States, its territories and freely associated states, primarily through their member community health centers.
Asian and Pacific Islander National Cancer Survivors Network
www.apiahf.org
The mission of APIAHF is to enable Asian Americans and Pacific Islanders to attain the highest possible level of health and well-being.
Center for Pan Asian Community Services, Inc.
www.cpacs.org
(770) 936-0969
The Center for Pan Asian Community Services, Inc., (CPACS) is a private non-profit organization. Its mission is to create and deliver culturally competent and comprehensive social and health services to counteract problems faced by immigrants, refugees, and racial-ethnic minorities.
www.iccnetwork.org
(713)798-4617
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
National Asian Women's Health Organization
www.nawho.org
(925)468-4120
NAWHO is a national nonprofit health organization with a mission to achieve health equity for Asian women and families.
National Cancer Institute - Portal on Cancer Health Disparities
www.cancer.gov/health-disparities
(800)4-CANCER
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
spiral.tufts.edu
SPIRAL: Selected Patient Information Resources in Asian Languages aims to increase electronic access to health information for consumers and healthcare providers by providing consumer information in Chinese, Cambodian, Vietnamese and Laotian. SPIRAL offers information on breast cancer and other health topics.
Caregivers and Family
www.americanhospice.org
(800) 347-1413
Mission is to improve access to quality hospice care through public education, professional training, and advocacy on behalf of consumers.
www.cancercaregiving.com
(202) 265-0033
Cancer Caregiving’s goal is to provide comprehensive, balanced heath information that is medically accurate yet easy to understand and apply to making informed health decisions.
www.caringbridge.org
(651) 789-2300
CaringBridge® is a 501(c)(3) nonprofit web service that connects family and friends during a critical illness, treatment or recovery. CaringBridge’s website is personal, private and available 24/7. It helps ease the burden of keeping family and friends informed. Patients and caregivers draw strength from loved ones’ messages of support.
caregiver.org
(800) 445-8106
Family Caregiver Alliance has developed a wide array of services and publications based on caregiver needs and offers programs at local, state, and national levels. Often described as a "one-stop shopping center for caregivers."
www.hospicefoundation.org
(800) 854-3402
Mission: to help those who cope personally or professionally with terminal illness, death, and the process of grief and bereavement.
Jack & Jill Late Stage Cancer Foundation
www.jajf.org
(404) 279-5211
When Mom or Dad is diagnosed with late-stage cancer, children find their immediate world turned upside down and face the reality that the rest of their lives will never be quite the same. The Jack & Jill Late Stage Cancer Foundation helps kids and their parents spend quality time together in the face of these hardships and uncertainties.
www.kidskonnected.org
(800) 899-2866
Kids Konnected's mission is to provide friendship, understanding, education, and support for the children who have a parent with cancer, or have lost a parent to cancer.
www.lbbc.lotsahelpinghands.com
Lotsa Helping Hands is a private, web-based caregiving coordination service that allows family, friends, neighbors, and colleagues to create a community to assist a family caregiver with the daily tasks that become a challenge during times of medical crisis, caregiver exhaustion, or when caring for an elderly parent.
www.memoriesoflove.org
(800) 625-1566
Memories of Love is the only wish foundation in existence having the single focus to fulfill Florida dream vacations for families with young children and a terminally ill parent. (Parents do not have to be terminal in order to qualify)
www.menagainstbreastcancer.org
(866)547-MABC
MABC is a national nonprofit organization providing targeted support services to educate and empower men to be effective caregivers when breast cancer strikes a female loved one and to target and mobilize men to be active participants in the fight against breast cancer.
www.mommyslight.org
(610) 725-9790
The purpose of Mommy’s Light is to bring joy and comfort to children and teens by helping them keep alive traditions or simple pleasures they shared with their mothers. To support young people in adapting to their mother's passing, Mommy's Light's key services include: free direct services to children and teens whose mothers are terminally ill or deceased, and education materials targeting grieving children and the adults who live, with or come into contact, with them.
Mothers Supporting Daughters with Breast Cancer
www.mothersdaughters.org
(410)778-1982
MSDBC is a national nonprofit organization providing free support services to help mothers who have daughters battling breast cancer.
National Family Caregivers Association
www.thefamilycaregiver.org
(800) 896-3650
National Family Caregivers Association (NFCA) empowers family caregivers to take action that will improve their life and the life of their loved one by providing them with support, education, and a public voice.
National Hospice and Palliative Care Organization (NHPCO)
www.nhpco.org
(800) 658-8898
Mission: To lead and mobilize social change for improved care at the end of life.
Clinical Trials
www.breastcancertrials.org
(415)476-5777
Breastcancertrials.org matches the health history of the visitor to the eligibility criteria of participating clinical trials.
CenterWatch Clinical Trials Listing Service
www.centerwatch.com
A company dedicated to providing patients and their advocates with a variety of information services and educational materials on clinical research. Their web site - www.centerwatch.com - provides an extensive list of IRB approved clinical trials being conducted internationally. Web site also lists promising therapies newly approved by the FDA (Food and Drug Administration).
www.emergingmed.com
(877) 601-8601
EmergingMed's mission is to leverage the power of the Internet to increase treatment options for people with serious illnesses and to speed up drug development through increased enrollment in clinical trials.
www.cancertrialshelp.org/trialcheck
(877)520-4457
Coalition of Cancer Cooperative Groups provides up-to-date and accurate information about cancer clinical trials. Trialcheck is a free online navigation and matching system linking patients to unbiased cancer clinical trials. You may enter your zip code, diagnosis or age, and a tailored list of treatment trials is displayed. Trial information can be easily downloaded for discussion with a physician regarding potential for enrollment.
cancertrials.nci.nih.gov/clinicaltrials
(800)4-CANCER
The NCI’s clinical trials page includes an excellent explanation of clinical trials, and suggestions on how to decide whether to participate in one. Find specific trials through its database, the Physician's Data Query (PDQ), and links to websites of cancer centers around the country.
bethesdatrials.cancer.gov/default.aspx
(888)NCI-1937
This website enables you to learn about and search for clinical trials conducted by the National Cancer Institute (NCI) at the NIH Clinical Center in Bethesda, Maryland. These clinical trials represent the core of the clinical program of the NCI's Center for Cancer Research (CCR).
Complementary and Alternative Approaches
www.acaringtouchforcancer.com/home/
(954)434-7563
This website has been designed for patients to gather information about the benefits of massage performed by a trained massage therapist during treatment for cancer.
Alliance Institute for Integrative Medicine
www.myhealingpartner.com
(513) 791-5521
The Alliance Institute for Integrative Medicine is a physician directed and driven Integrative Medical Center located in Cincinnati, Ohio.
American Academy of Medical Acupuncture
www.medicalacupuncture.org
(310)364-0193
The purpose of the American Academy of Medical Acupuncture is to promote the integration of concepts from traditional and modern forms of acupuncture with Western medical training to create a more sythesized, comprehensive approach to health care. It is the sole physician-only professional acupuncture society in North America.
www.annieappleseedproject.org
The Annie Appleseed Project, a 501(c)(3) nonprofit corporation, provides information, education, advocacy, and awareness for people with cancer and their family and friends who are interested in complementary or alternative medicine (CAM) and natural therapies from a patient's perspective. They are an all volunteer organization.
Center for Advancement in Cancer Education
The Center for Advancement in Cancer Education (CACE) is a not-for-profit cancer education, counseling and referral agency providing nutritional, immunological and psychological resources for cancer prevention, prevention of recurrence, and support during and after treatment. Founded in 1977, the Center focuses on combining the body’s natural healing potential with advances in medical science.
www.drweil.com
DrWeil.com is a leading resource for education, information, products, services and philanthropic contributions based on the principles of integrative medicine.
Memorial Sloan-Kettering Cancer Center
www.mskcc.org/aboutherbs
(212)639-2000
Integrative Medicine Service's herbs and botanical information. This site provides objective information for oncologists and healthcare professionals, including a clinical summary for each agent and details about constituents, adverse effects, interactions, and potential benefits or problems.
National Center for Complementary and Alternative Medicine
nccam.nih.gov
NCCAM is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training complementary and alternative medicine (CAM) researchers and disseminating authoritative information to the public and professionals.
Office of Cancer Complementary and Alternative Medicine
www.cancer.gov/cam/index.html
(301)435-7980
The Office of Cancer Complementary and Alternative Medicine (OCCAM) coordinates and enhances the activities of the National Cancer Institute (NCI) with regard to complementary and alternative medicine (CAM). This website includes information on current clinical trials being done using complementary and alternative medicine.
www.oncologynutrition.org
The mission of Oncology Nutrition is to provide direction and leadership for quality oncology nutrition practice through education and research. The practice of oncology nutrition covers research, prevention, treatment, recovery, palliative care, and hospice.
www.herbs.org
(303)449-2265
The Herb Research Foundation is a source of information on the health benefits and safety of herbs and expertise in sustainable botanical resource development.
www.vitaloptions.org
(818)508-5657
Vital Options International TeleSupport Cancer Network is a not-for-profit cancer communications, support and advocacy organization whose mission is to facilitate a global cancer dialogue by using communications technology to reach every person touched by cancer.
Financial Support
Association for Community Cancer Centers
www.accc-cancer.org/
(301) 984-9496
Provides comprehensive information on reimbursement assistance programs for oncology-related services.
Avon Foundation Breast Care Fund
www.avonbreastcare.org
(212)594-7741
The Avon Foundation Breast Care Fund was created by the Avon Foundation to reach the women most in need of breast cancer screening and treatment services. Through the fund, financial support is made available to community-based programs providing education and outreach to medically underserved women, including low-income, older and minority women.
www.azandme.com
Run by the pharmaceutical company AstraZeneca, this website offers information about the manufacturer's patient assistance programs to help people with little or no health insurance gain. Among the medicines produced by AstraZeneca are Arimidex (anastrozole), Faslodex (fulvestrant) and Zoladex (goserelin).
www.bmcf.net
(800)878-9184
The Brenda Mehling Cancer Fund supports people ages 18-40 during cancer treatment by providing services to meet daily needs not covered by insurance. Typical grants cover $600 worth of medical co-payments, rent and mortgage, transportation, car insurance, repairs and groceries.
Cancer Financial Assistance Coalition
www.cancerfac.org
CFAC is a coalition of financial assistance organizations joining forces to help cancer patients experience better health and well-being by limiting financial challenges.
www.cfoa.org
(800) 578-5284
Cancer Fund of America is a non-profit organization set up to help cancer patients, hospices, and other non-profit healthcare providers by way of sending products free of charge directly to them.
www.cancercare.org/get_help
(800)813-HOPE
For more than 60 years, CancerCare has provided financial assistance to help with some types of costs, including transportation, homecare, childcare and pain medication. CancerCare’s social workers and case managers are well trained in financial issues and will work closely with you to get you the help you need.
www.cccscholarships.org
(866) 540-1392
CCC is a nonprofit organization dedicated to improving quality of life for young adult cancer survivors through a scholarship program and an online support network for cancer survivors who want to attend college.
Centers for Medicare and Medicaid Services (CMS)
www.cms.hhs.gov
800-MEDICARE
This government Web site provides information about the federal programs Medicaid and Medicare. Medicaid is run by the states, and each state sets its own guidelines on eligibility and services; it is available to eligible low-income people and families. Medicare covers people age 65 or older and people under age 65 with certain disabilities.
www.cleaningforareason.org
(877) 337-3348
A nonprofit organization offering free professional housecleaning and maid services to improve the lives of women undergoing treatment for cancer.
www.corpangelnetwork.org
(914)328-1313
Corporate Angel Network arranges free air transportation for cancer patients traveling to treatment using the empty seats on corporate jets.
www.familiescan.org
(650)948-8268
FamiliesCAN provides the families of cancer patients who are being treated in Santa Clara County, CA, with financial assistance and hands-on support in managing their non-medical expenses during the treatment and recovery period.
givinganon.org
888-855-GIFT (4438)
Giving Anonymously is a non-profit organization facilitating generosity between people. Their goal is to enable and encourage you to be your own charity, and for you to give anonymously to those around you in need.
www.healthwellfoundation.org
(800)675-8416
The Healthwell Foundation is a nonprofit, charitable organization that helps individuals afford prescription medications for specific illnesses. The foundation provides financial assistance to eligible people to cover certain out-of-pocket healthcare costs, including prescription medicine coinsurance, co-payments and deductibles; health insurance premiums; and other selected out-of-pocket healthcare costs.
www.hrsa.gov/hillburton/default.htm
(800)638-0742
Hill-Burton grants federal funds to hospitals for infrastructure needs. Hospitals that receive Hill-Burton funds are required by law to provide services to those who cannot afford to pay for hospitalization. Brochures are available in Spanish and English.
LifeLines of Care Patient Assistance Foundation
www.bmspaf.org
(800)736-0003
The Bristol-Myers Squibb Patient Assistance Foundation provides temporary assistance to qualifying people with a financial hardship who generally have no private prescription insurance and are not enrolled in a government health care program like Medicaid or Medicare. Medicines manufactured by Bristol-Myers Squibb include Ixempra (ixabepilone) and Sprycel (dasatinib).
MercyMedical.org
(800) 296-1217
Mercy Medical Airlift is dedicated to those in need of air medical transportation and provides charitable airline flights for cancer patients and their escorts.
National Breast and Cervical Cancer Early Detection Program
www.cdc.gov/cancer/nbccedp/
(800)CDC-INFO
The National Breast and Cervical Cancer Early Detection Program (NBCCEDP), run by the federal Centers for Disease Control, provides access to critical breast and cervical cancer screening services for underserved women in the United States.
National Patient Travel Center (NPATH)
patienttravel.org
(800) 296-1217
The National Patient Travel Center provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network.
www.needymeds.com
NeedyMeds.com is a nonprofit organization that helps people who cannot afford medicine or the costs of health care. The site offers links to patient assistance programs, government programs and other groups that help you find ways to pay for treatment.
Partnership for Prescription Assistance
www.helpingpatients.org
(888)4PPA-NOW
The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, healthcare providers, patient advocacy organizations and community groups to help low income patients who lack prescription coverage get the medicines they need at little or no cost.
Patient Access Network Foundation
www.patientaccessnetwork.org
(866)316-PANF
An independent, nonprofit group, the Patient Access Network Foundation is dedicated to assisting those who cannot afford the out-of-pocket costs associated with treatment needs. Throughout all 50 states and three U.S. territories PANF provides trained case managers that you or your advocates may speak with about your care.
www.patientadvocate.org
(800)532-5274
The Patient Advocate Foundation is a national nonprofit organization that provides professional case management services to Americans with chronic, life-threatening and debilitating illnesses. PAF case managers serve as active liaisons for you and your insurers, employers or creditors to resolve insurance, job retention and debt crisis matters as they relate to your diagnosis.
www.uneedpsi.org
(800) 366-7741
PSI is committed to assisting persons with chronic medical illnesses in accessing health insurance and pharmacy co-payment assistance.
www.pfizerhelpfulanswers.com/pages/Find/FindAll.aspx
(866)776-3700
This website from Pfizer lists the pharmaceutical company's patient assistance programs for people who do not have health insurance or prescription coverage. Medicines manufactured by Pfizer include Aromasin (exemestane), Ellence (epirubicin) and Sutent (sunitinib).
www.sensationalinsurvival.org
(585) 586-5680
SISSM is committed to improving the quality of life of those battling breast cancer. We do this by providing financial assistance, essential services and quality of life enhancements during treatment to those in need.
www.thefirstmile.org/charities.html
The First Mile Foundation was established in the fall of 2003 in honor of the many people affected by cancer each year. The goal of the Foundation is to provide financial support to families and individuals in order to alleviate the added everyday stresses associated with cancer. We seek to be an educational resource and provide medical research to help people lower their risk of cancer.
www.thesamfund.org
(617)938-3484
The SAMFund is a unique non-profit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life, by providing financial support through the distribution of grants and scholarships.
General Breast Cancer Information and Support
Alamo Breast Cancer Foundation
www.alamobreastcancer.org
(800)692-9535
ABCF is a nonprofit organization whose purposes are to provide support and information by trained peer volunteers via the Breast Cancer Helpline, to help educate the public on the importance of early detection and breast self-exam, and to participate in community outreach programs.
Breast Cancer Network of Strength
www.networkofstrength.org
(800)221-2141
The mission of Breast Cancer Network of Strength is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone.
Breast Cancer Research Foundation
www.bcrfcure.org
(646) 497-2600
The mission of The Breast Cancer Research Foundation® is to achieve prevention and a cure for breast cancer in our lifetime by providing critical funding for innovative clinical and translational research at leading medical centers worldwide, and increasing public awareness about good breast health. A minimum of 85 cents of every dollar goes to research and awareness programs.
www.breastcancer.net
BCN features up-to-date breast cancer-related news and links to organizations and sites of interest to breast cancer survivors. You can also register to receive a free e-mail newsletter, which comes out nearly every day, to alert you to breast cancer news stories.
www.breastcancer.org
Breastcancer.org is a nonprofit organization for breast cancer education. The site contains medical information, research news, a celebrity talking dictionary, pictures of breast cancer, discussion boards, open chat rooms and more.
www.BreastCancerStories.com
(603)759-5640
BreastCancerStories.com is a new online community where breast cancer patients can stay in touch with friends, family and one another as they go through this challenging journey.
www.cancer101.org
(646)638-2202
Cancer101's mission is to empower patients and those affected by breast cancer to take control of their diagnosis by providing them with the necessary armor they need to fight this disease: organizational tools and resources that meet their individual needs. They meet patients on the front line and turn what is often a chaotic experience into a calm plan of attack.
Cancer101 recently produced a 10-step series of podcasts which provide women diagnosed with breast cancer immediate reassurance and a plan to cope. Access them at http://www.podcastgo.com/Channel.aspx?nid=dfae0172-7d95-43dd-9945-bd42aa4102c2.
Dr. Susan Love Research Foundation
www.dslrf.org
(866)569-0388
The mission of the Dr. Susan Love Research Foundation is to eradicate breast cancer and improve the quality of women's health through innovative research, education and advocacy.
www.hurricanevoices.org
Hurricane Voices raises public consciousness, incites action and breaks down the barriers to progress in pursuit of the causes and cures for breast cancer through public awareness campaigns, educational programs and grant making and sponsorships.
www.imermanangels.org
(877)274-5529
Imerman Angels is a federally registered 501(c )(3) not-for-profit organization providing one-on-one cancer support: connecting cancer fighters, survivors and caregivers. Imerman Angels partners a person fighting cancer with someone who has beaten the same type of cancer. One-on-one relationships give a fighter the chance to ask personal questions and get support from someone who is uniquely familiar with their experience. The service is absolutely free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.
bidmc.org/YourHealth/BIDMCInteractive/Blogs/LivingwithBreastCancer.aspx
A blog about the challenges of living with breast cancer written by Hester H Schnipper, a member of LBBC's Medical Advisory Board, experienced oncology social worker and two time breast cancer survivor.
www.mamm.com
(877)668-1800
MAMM magazine is devoted to meeting the needs of women diagnosed with breast and reproductive cancer.
Pink-Link Online Breast Cancer Support Network
www.pink-link.org
The Pink-Link Breast Cancer Support Network provides valuable community and support resources for breast cancer patients and survivors, as well as the family, friends, medical community, and other caretakers of breast cancer patients and survivors.
www.sharecancersupport.org
(866)891-2392
SHARE offers survivor-led support to those affected by breast or ovarian cancer. Services include hotlines in English and Spanish, with capacity in 12 other languages; support groups; wellness programs; educational meetings; and advocacy activities.
ww5.komen.org
(877)GO-KOMEN
The mission of the Komen Foundation is to eradicate breast cancer through research, education, screening and treatment.
www.thepinkypromise.com
(866)601-4221
Empowers women to take control of their health by providing information, tools and self-examination reminders for the early detection of breast cancer.
www.thebreastcaresite.com
TheBreastCareSite.com was developed to address the general needs of all who have been touched by breast cancer, including newly diagnosed patients and long time survivors, as well as their friends, family members and coworkers. Their mission focuses on providing breast cancer survivors with accurate information about everything from post-surgery options and products to information about insurance and intimacy issues.
www.tlcdirect.org
(800)850-9445
"Tlc" Tender Loving Care is the American Cancer Society's new ecommerce--enabled website. "Tlc" offers products for women with cancer with treatment-related hair loss, as well as special products for women diagnosed or recovering from breast cancer.
U.S. News & World Report Breast Cancer Center
usnews.healthline.com/usnewschannel/breastcancer
The U.S. News & World Report Breast Cancer Center, launched in conjunction with the Mayo Clinic, contains an overview of the causes, risk factors and types of breast cancer. It also has information about breast cancer prevention, symptoms, tests, treatment and management.
www.womenstories.org
(716)873-3689
The mission of WomenStories is to inspire, inform and support breast cancer patients by documenting and sharing survivors' experiences. WomenStories is a series of videos in which breast cancer survivors offer emotional support and advice that women need and value.
General Cancer Information
American Association for Cancer Research
www.aacr.org
(866)423-3965
AACR is the oldest and largest scientific organization in the world focused on every aspect of cancer research. Programs and services foster the exchange of knowledge and new ideas among scientists dedicated to cancer research, provide training opportunities for the next generation of cancer researchers, and increase public understanding of cancer.
www.cancer.org
(800)ACS-2345
ACS maintains a website with access to information about all types of cancer, news stories, research information, statistics, alternative approaches, and tips for living with cancer. A nice feature of this site is the section on how to tell children about a parent’s cancer diagnosis.
American Institute for Cancer Research
www.aicr.org
(800)843-8114
The American Institute for Cancer Research fosters research on diet and cancer prevention and educates the public about the results.
American Society of Clinical Oncology
www.asco.org
(888)282-2552
ASCO is a resource for people affected by cancer, doctors and researchers. The website includes general cancer information and cancer news items.
Association of Cancer Online Resources (ACOR)
www.acor.org
The heart of ACOR is a large collection of cancer-related Internet mailing lists , which delivered over 1,5 million e-mail messages last week to subscribers across the globe.
In addition to supporting the mailing lists, ACOR develops and hosts state-of-the-art Internet-based knowledge systems that allow the public to find and use credible information relevant to their illness.
Aurora Imaging Technology, Inc.
www.auroramri.com
(877)975-7530
Aurora is the developer and manufacturer of the AURORA, the world’s first Dedicated Breast MRI system.
www.cancerconsultants.com
The mission of Cancer Consultants is to provide the most up-to-date cancer information on the treatment and prevention of cancer for consumers and professionals.
www.cancerhopenetwork.org
(877)467-3638
Cancer Hope Network is a national, nonprofit organization which offers free, confidential, one-on-one emotional support to adult cancer patients and their caregivers.
Cancer Information Service (a program of the NCI)
cis.nci.nih.gov
1-800-4-CANCER
Call CIS for more information on free mammograms and screenings for all cancers throughout the United States.
www.cancersupportcommunity.org
(888) 793-WELL
In July 2009, The Wellness Community and Gilda’s Club joined forces to become the Cancer Support Community. Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. The organization delivers a comprehensive menu of personalized and essential services including support groups, counseling, education and healthy lifestyle programs. They offer a network of community-based centers and online services run by trained and licensed professionals.
www.cancer.net
(888)651-3038
Cancer.Net is the patient-information website of the American Society of Clinical Oncology and is designed to help patients and families make informed healthcare decisions.
www.cancercare.org
(800)813-HOPE
CancerCare is a national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance.
www.cancerpage.com
This website provides cancer information and community by informing, connecting and empowering cancer survivors.
Center for Advancement in Cancer Education
www.beatcancer.org
(610) 642-4810
The Center for Advancement in Cancer Education (CACE) is a not-for-profit cancer education, counseling and referral agency providing nutritional, immunological and psychological resources for cancer prevention, prevention of recurrence, and support during and after treatment. Founded in 1977, the Center focuses on combining the body’s natural healing potential with advances in medical science.
Coping with Cancer: Supportive and Palliative Care
www.cancer.gov/cancertopics/coping
Online coping and supportive care content from the National Cancer Institute. Get information on managing physical and emotional side effects, finding healthcare services, insurance and financial information, clinical trials and more.
CURE: Cancer Updates, Research & Education
www.curetoday.com
(800)210-CURE
CURE is a free magazine for people with cancer, survivors and caregivers that combines the science and humanity of dealing with the cancer experience. Visit CURE’s website to read current and past issues.
emergingmed.com
(877) 601-8601
EmergingMed's mission is to leverage the power of the Internet to increase treatment options for people with serious illnesses and to speed up drug development through increased enrollment in clinical trials. EmergingMed offers a free online tool that helps cancer patients find appropriate clinical trials in a matter of minutes.
Frankly Speaking About Cancer with The Wellness Community
www.modavox.com/voiceamerica/vshow.aspx?sid=965
During podcasts of Frankly Speaking About Cancer with The Wellness Community, Kim Thiboldeaux, the President and CEO of The Wellness Community, talks about how to live a better life with cancer. The program features patients, physicians, researchers, social workers and caregivers with whom listeners can connect and draw inspiration. Episodes tackle critical issues such as: achieving the best care and quality of life, new research and treatments, relieving stress and anxiety, life beyond treatment and talking to kids about cancer.
Fred Hutchinson Cancer Research Center Survivorship Program
www.fhcrc.org/patient/support/survivorship
(866)543-4272
Fred Hutchinson Cancer Research Center's Survivorship Program provides clinical care, patient education and research opportunities to patients who have survived cancer and are not in active cancer treatment or are in long-term therapy to prevent recurrence.
www.livestrong.org
(512)236-8820
The mission of the Lance Armstrong Foundation is to inspire and empower people with cancer to live strong. They serve their mission through education, advocacy, public health and research programs.
www.asbestos.com
(800)612-2270
The Mesothelioma Cancer Center is an educational resource for those affected by asbestos exposure. Their website contains information on the various types of asbestos and the health hazards of those types, as well as details on mesothelioma symptoms, stages and all known treatments. They also feature a section dedicated specifically to the unique relationship between asbestos and women, as well as that between asbestos and breast cancer.
www.mesotheliomaweb.org
(877) 367-6376
A Web site devoted to the needs of people with mesothelioma, providing information on palliative care, nutrition, chemotherapy, clinical trials and more.
www.myriadtests.com
(800)469-7423
Myriad Genetic Laboratories is a leader in cancer predisposition testing.
www.cancer.gov
(800)4-CANCER
NCI has a comprehensive web site with a wealth of information, including basic cancer facts, cancer news and research. You can also access information about clinical trials directly at the clinical trials page, which includes an excellent explanation of clinical trials, and suggestions on how to decide whether to participate in one. Find specific trials through its database, the Physician's Data Query (PDQ), and links to websites of cancer centers around the country.
National Comprehensive Cancer Network (NCCN)
www.nccn.org
(215) 690-0300
The National Comprehensive Cancer Network (NCCN), a not-for-profit alliance of 21 of the world’s leading cancer centers, is dedicated to improving the quality and effectiveness of care provided to patients with cancer.
www.navigatingcancer.com
Navigating Cancer's vision is to empower cancer patients to navigate their best care. Navigating Cancer is a free website specifically for cancer patients and their supporters, offering tools and authoritative cancer resources that empower patients to take control of their health and partner more closely with their physicians, support network and other like patients.
www.oncolink.upenn.edu
The University of Pennsylvania's Cancer Center runs OncoLink, which provides comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances.
People Living With Cancer, American Society of Clinical Oncology
www.plwc.org
(888) 651-3038
PLWC is the patient information website of the American Society of Clinical Oncology (ASCO), the world's leading organization representing medical professionals who care for people with cancer. PLWC provides accurate, reliable, oncologist-approved information to help patients and families make informed health-care decisions.
www.shopwellwithyou.org
(800)799-6790
Shop Well With You is a national nonprofit organization dedicated to improving the quality of life for women affected by cancer. This website helps people heal by offering guidance on how to use clothes as a tool to achieve a sense of well-being, comfort and confidence.
www.cancerproject.org
(202) 244-5038
The Cancer Project provides classes, books, video programs, fact sheets, brochures, and other educational materials on cancer prevention and survival. We also conduct clinical research studies to investigate dietary issues and publicize the need for cancer prevention and the value of healthy diet changes. The Cancer Project’s hands-on nutrition classes have become incredibly popular, helping cancer survivors and their families learn new tastes and easy food preparation skills.
www.vitaloptions.org
(818)508-5657
Vital Options International TeleSupport Cancer Network is a not-for-profit cancer communications, support and advocacy organization whose mission is to facilitate a global cancer dialogue by using communications technology to reach every person touched by cancer.
www.yalecancercenter.org
(866)YALE-CANCER
A National Cancer Institute designated comprehensive cancer center for over 30 years, Yale Cancer Center is one of only 39 Centers in the nation and the only comprehensive center in Southern New England.
General Health Information
www.eatright.org
(800) 877-1600
ADA serves the public by promoting optimal nutrition, health and well-being.
www.ama-assn.org
(800)621-8335
This website features up-to-date news, in-depth special reports, and summaries from major professional conferences on a broad range of topics pertaining to general health issues.
Medline Plus Health Information
www.medlineplus.gov
MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.
www.myndma.com
(888)636-NDMA
myNDMA (my National Digital Media Archive) was created specifically for patients to securely handle their important medical images such as mammograms and MRIs, along with actual reports and data.
www.nih.gov
(301)496-4000
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research.
www.covermefoundation.org
(307) 460-2013
The CoverMe Foundation was conceived as an organization to improve the overall health of citizens in our local communities as well as throughout the United States by assisting consumers in their efforts to locate and access healthcare coverage. Drawing from community resources, government assistance and select corporate partnerships the Foundation strives to facilitate reductions in the number of the uninsured and to improve the overall quality of life for our nation’s citizens.
www.vrg.org
(410) 366-VEGE
Vegetarian Resource Group (VRG) is a non-profit organization dedicated to educating the public on vegetarianism and the interrelated issues of health, nutrition, ecology, ethics, and world hunger. In addition to publishing the Vegetarian Journal, VRG produces and sells cookbooks, other books, pamphlets, and article reprints.
www.webmd.com
WebMD.com is a comprehensive general health resource featuring an online library, news, message boards and online chat events.
Healthcare Professionals
American Society of Breast Disease
www.asbd.org
(214)368-6836
ASBD serves healthcare professionals involved in the prevention, early detection, treatment and research of breast disease and advocates for a multidisciplinary team approach to breast health management.
American Society of Clinical Oncology
www.asco.org
ASCO is a resource for people affected by cancer, doctors and researchers. The website includes general cancer information and cancer news items.
Journals Oncology from The Lancet
www.thelancet.com/collections/oncology?collexcode=119
(888) 834-7287
The aim of The Lancet Oncology cancer journal is to publish interesting, informative, and practice-changing articles on any topic connected with clinical oncology.
Lymphology Association of North America
www.clt-lana.org
(773)756-8971
The Lymphology Association of North America (LANA) is a non-profit corporation composed of healthcare professionals. The purpose of the organization is to promote standards for management of individuals with Lymphedema and or related disorders, to establish and maintain certification for medical professions who provide such services, and to promote the awareness and science of lymphology.
National Coalition of Oncology Nurse Navigators
www.nconn.org
The mission of NCONN is to promote excellence in oncology patient care by fostering collaborative relationships and professional development among oncology nurse navigators and all healthcare disciplines locally, regionally and nationally.
www.ons.org
(866)257-4ONS
The Oncology Nursing Society is a professional organization of more than 32,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research and administration in oncology nursing.
San Antonio Breast Cancer Symposium
www.sabcs.org
(210)567-6070
This annual meeting provides state-of-the-art information on the experimental biology, etiology, prevention, diagnosis and therapy of breast cancer and pre-malignant breast disease to an international audience of academic and private physicians and researchers.
HER2-Positive Breast Cancer
www.hermove.com
HER Move brings together a unique offering of health and wellness information to inspire women with HER2-positive breast cancer to join a ‘movement’ and discover how to live a full life with breast cancer.
www.herconnection.com/HER2Sisterhood
This site is dedicated to inspiring other women to find new sources of support through a HER2 Sisterhood.
www.her2support.org
This website is the only online support group dedicated to women diagnosed with HER2/neu positive breast cancer.
High Risk
www.bebrightpink.org
Bright Pink is a unique resource providing support to young women who are at high risk for breast and ovarian cancer.
Facing Our Risk of Cancer Empowered
www.facingourrisk.org
(866)288-RISK
FORCE is a nonprofit organization for women who are at high risk of developing breast and ovarian cancer because of family history and genetic status and for members of families in which a BRCA mutation may be present.
bmic.upenn.edu/wiser
(215)898-5000
The WISER Sister project is a five year study for women at elevated risk of developing breast cancer. This study will examine the effect exercise has on estrogen levels. This is important because exercise might reduce risk for breast cancer through this physiological change. The study will involve 160 women aged 18-40. Each woman will be in the study for approximately 8 months.
www.womenatrisknyc.org
(212) 305-9525
Women At Risk (WAR®) is the Breast Cancer Program at New York-Presbyterian Hospital/Columbia University Medical Center, whose mission is to enhance the lives of women who are at high risk for the development of breast cancer and women with breast cancer through research, education and support.
Home Care Services
(866) 996-1087
www.homeinstead.com
Home Instead Senior Care offers in-home care to help your family keep your aging mother, father, grandparents or friends in their home as they grow older. Services include assistance with trips to the doctor, reminders to take the right medication at the right time, meal preparation, light housekeeping, errands and shopping.
Inflammatory Breast Cancer
www.ibcsupport.org
The IBC support website answers questions about inflammatory breast cancer and provides support for people diagnosed with inflammatory breast cancer.
Inflammatory Breast Cancer Research Foundation
www.ibcresearch.org
(877)STOP-IBC
The IBC Research Foundation is the only cancer research organization that specifically targets IBC and the research to find its cause.
International
www.abcn.ca
Atlantic Breast Cancer Net, a web-based community news and information portal, is an initiative of Breast Cancer Action Nova Scotia.
www.cancerblackcare.org.uk
CBC is the United Kingdom’s leading cancer support service for the black and minority ethnic community.
www.cancerworld.org/cancerworld/home.aspx?id_sito=5&id_stato=1
EUROPA DONNA, The European Breast Cancer Coalition, works to raise awareness of breast cancer and to mobilize the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and care and increased funding for research.
Latinas
American Cancer Society (Spanish)
www.cancer.org/docroot/ESP/ESP_0.asp
(800)ACS-2345
ACS maintains a website with access to information about all types of cancer, news stories, research information, statistics, alternative approaches, and tips for living with cancer.
Breast Cancer Network of Strength (Spanish)
www.networkofstrength.org/espanol
(800)221-2141
The mission of Breast Cancer Network of Strength is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone.
espanol.cancerandcareers.org
Cancer and Careers is committed to changing the face of cancer in the workplace by providing a comprehensive website, free publications, and a series of support groups and educational seminars for employees with cancer.
Día de la Mujer Latina (English and Spanish)
www.diadelamujerlatina.org
(770)814-8790
The mission of Día de la Mujer Latina, Inc. is to promote health awareness to the underserved Latino community by providing an ethnic-specific education, a culturally appropriate setting for early detection screening and prevention care, and resource information for follow-up services.
Institute for Health Promotion Research
ihpr.uthscsa.edu
(210)562-6500
The IHPR researches the causes and solutions to the unequal impact of cancer and chronic disease affecting residents in San Antonio, South Texas, and the nation to improve overall health, especially that of people at a disadvantage due to race/ethnicity, education, income or access to care.
Intercultural Cancer Council (English)
iccnetwork.org
(713)798-4617
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
Lance Armstrong Foundation (Spanish)
www.livestrongespanol.org/site/c.mwL1KkN0LvH/b.4078341/
(512)236-8820
The mission of the Lance Armstrong Foundation is to inspire and empower people with cancer to live strong. They serve their mission through education, advocacy, public health and research programs.
Latin American Health Institute
www.lhi.org
(617)350 6900
The Latin American Health Institute (LHI) focuses on strengthening families and developing community resources. LHI works with numerous public and private organizations across a wide range of issues in five programmatic areas: research, policy, education, service and technical assistance.
www.latinascontracancer.org
(888)LCC-8110
Latinas Contra Cancer (LCC) was founded to address the void in culturally and linguistically sensitive programs that meet the health care needs of Latinos around issues of cancer.
Medline Plus Health Information (Spanish)
www.medlineplus.gov/spanish
MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH) and other government agencies and health-related organizations. MedlinePlus also has extensive information about medications, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.
National Alliance for Hispanic Health
www.hispanichealth.org
(202)387-5000
The mission of the National Alliance for Hispanic Health is to improve the health and well being of Hispanics.
National Cancer Institute (NCI) (Spanish)
www.cancer.gov/espanol
(800)4-CANCER
NCI has a comprehensive website with a wealth of information, including basic cancer facts, cancer news and research. You can also access information about clinical trials directly at the clinical trials page, which includes an excellent explanation of clinical trials, and suggestions on how to decide whether to participate in one. Find specific trials through its database, the Physician's Data Query (PDQ), and links to websites of cancer centers around the country.
National Cancer Institute - Portal on Cancer Health Disparities
www.cancer.gov/health-disparities
(800)4-CANCER
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
National Institutes of Health (Spanish)
salud.nih.gov
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the primary federal agency for conducting and supporting medical research.
www.nueva-vida.org
(202) 223-9100
The mission of Nueva Vida is to inform, support and empower Latinas whose lives are affected by cancer, and to advocate for and facilitate the timely access to state of the art cancer care, including screening, diagnosis, treatment and care for all Latinas.
prevencion.org
(202) 832-6789
Prevención, Inc. is a 501(c)3 non-for-profit organization, founded by Dr. Elmer Huerta, M.D., M.P.H., in 1996. Its mission is to develop, produce and disseminate Spanish-language educational materials on health promotion and disease prevention.
www.redesenaccion.org
(210)562-6500
Redes En Acción: The National Hispanic/Latino Cancer Network is a National Cancer Institute-funded initiative to combat cancer among Latinos.
www.sharecancersupport.org
(866)891-2392
SHARE offers survivor-led support to those affected by breast or ovarian cancer. Services include hotlines in English and Spanish, with capacity in 12 other languages; support groups; wellness programs; educational meetings; and advocacy activities.
The Denise Roberts Breast Cancer Foundation
www.tdrbcf.org
(888) 833-6473
The Denise Roberts Breast Cancer Foundation (TDRBCF) is a 501 (c) – (3) nonprofit organization, which exists to change the consciousness of women and men of color, to one of health and self-awareness. TDRBCF exists to change the perception of breast health awareness to one that has little to do with age or gender - to one of understanding that acts as a mighty bridge over troubled waters. We strive to touch the underserved community in a way that replaces fear with knowledge and empowerment.
Lesbians
Lesbian Health Research Center
www.lesbianhealthinfo.org
(415) 502-5209
LHRC is dedicated to improving the health of lesbians, bisexual women, transgender people, and our families. To achieve this goal, we create comprehensive programs of research, education and trainings, public events and community collaborations.
National Cancer Institute - Portal on Cancer Health Disparities
www.cancer.gov/health-disparities
(800)4-CANCER
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
www.cancer-network.org/
The National LGBT Cancer Network is the first national program addressing the needs of gay, lesbian, bisexual & transgender people with cancer and those at risk.
The Mautner Project, The National Lesbian Health Organization
www.mautnerproject.org
(866)MAUTNER
The Mautner Project educates lesbians about their health, trains healthcare providers about their lesbian patients and provides information on how to achieve better health outcomes for lesbians.
Lodging
www.joeshouse.org
(877) 563-7468
Joe's House is a nonprofit organization providing a nationwide online service that helps cancer patients and their families find lodging near treatment centers.
Male Breast Cancer
www.cancer.org/docroot/CRI/CRI_2_3x.asp?dt=28
(800)ACS-2345
ACS maintains a website with access to information about all types of cancer, news stories, research information, statistics, alternative approaches, and tips for living with cancer. The website includes a detailed guide for male breast cancer, including key statistics, risk factors, diagnosis, treatment and prevention.
www.johnwnickfoundation.org
(866) 222-4441
To educate the world about the risk of breast cancer in men, and to provide preventive and reactive measures to cancer through education and research.
Native Americans
iccnetwork.org
(713)798-4617
The Intercultural Cancer Council (ICC) promotes policies, programs, partnerships and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
National Cancer Institute - Portal on Cancer Health Disparities
www.cancer.gov/health-disparities
(800)4-CANCER
NCI supports research to identify and understand the factors that contribute to disparities. NCI also funds studies to develop and disseminate culturally appropriate interventions. Link to this NCI page for an overview of cancer health disparities, statistics, research, training opportinities and other resources about health disparities.
National Indian Women's Health Resource Center (NIWHRC)
www.niwhrc.org
(918) 456-6094
The National Indian Women's Health Resource Center (NIWHRC), is a national non-profit organization whose mission is "To assist American Indian and Alaska Native women achieve optimal health and well being throughout their lifetime."
Native American Cancer Research Corporation
www.natamcancer.org
(800)537-8295
The Native American Cancer Research Corporation seeks to reduce Native American cancer incidence and mortality and to increase survival from cancer among Native Americans.
Office of Native Cancer Survivorship
www.oncs.org
(800) 315-8848
The National Office of Native Cancer Survivorship is dedicated to improving the lives of those faced with a cancer diagnosis. Working to ensure the initiation of and access to the needed cancer related services and support to reach survivorship and improve quality of life thereafter.
The Native American Women’s Health Education Resource Center
www.nativeshop.org/nawherc.html
(605)487-7072
The Native American Women’s Health Education Resource Center addresses pertinent issues of health, education, land and water rights and economic development of Native American people.
Philadelphia Regional Resources
www.cancer.org/hopelodgephiladelphia
(800) 227-2345
The AstraZeneca Hope Lodge of the American Cancer Society in the Greater Philadelphia area is a 30,000 square-foot facility that will provide temporary, free housing for an annual average of 1,300 cancer patients and their caregivers. Transportation to and from local treatment centers is also available.
Delaware County Memorial Hospital
www.crozer.org
(610) 284-8100
501 North Lansdowne Ave.
Drexel Hill, PA 19026
Provides free screenings and services as part of the Healthy Woman Program.
Dynamic Rehabilitation Services, Inc.
www.dynamicrehabilitation.com
(215) 782-8760
8080 Old York Road, Suite 208
Elkins Park, PA 19027
www.fccc.edu
(888) FOX-CHASE
333 Cottman Ave.
Philadelphia, PA 19111-2497
www.horsepowerforlife.org
(484) 341-8393
A non-profit 501(c)(3) organization dedicated to providing free lessons and other horse related activities for cancer patients of all ages and their families. It is our goal to improve the physical and emotional quality of life for students as they learn about horses and how to ride in an atmosphere of professionalism, teamwork, and fun.
www.novacare.com
(610) 527-1197
101 Bryn Mawr Avenue, Suite 330
Bryn Mawr, PA 19010
www.koppt.com
(610) 337-7155
491 Allendale Road, Suite 112
King of Prussia, PA 19406
www.lovelyyouonline.com
(610) 565-0225
201 South Orange St.
Media, PA 19063
Lovely You offers an assortment of wigs, hats, scarves, turbans, skin, scalp and body care products and more.
www.mannapa.org
(215) 496-2662
A small professional staff and 1,000 dedicated volunteers bring over 40,000 nutritious, freshly prepared, home-delivered meals each month to individuals and families living with a life-threatening illness. MANNA dieticians promote wellness through nutrition education and counseling. Through these services, MANNA provides opportunities for caring people to extend loving support to families, friends, and neighbors in the Delaware Valley.
www.mercyhealth.org
(610) 278-2000
2701 DeKalb Pike
E. Norristown, PA 19401
Montgomery County Health Department
health.montcopa.org
(610) 278-5117
1430 DeKalb Street, P. O. Box 311
Norristown, PA 19404-0311
Works with several local hospitals to provide free screenings and services to eligible women (specific to residents of Montgomery county).
Montgomery Rehabilitation Services
www.montgomeryhospital.org
(610) 270-2400
1330 Powell Street
Norristown, PA 19401
www.mossrehab.com
(215) 456-9800
1200 W. Tabor Road
Philadelphia, PA 19141
Paoli Hospital Lymphedema Management Program
mainlinehealth.org/oth/Page.asp?PageID=OTH000467
(866) CALL-MLH
The Lymphedema Management Program at Paoli Hospital, offered in collaboration with the Member of the National Lymphedema Network, offers a full continuum of care. Under physician direction, specially-trained and experienced occupation and/or physical therapists employ a variety of techniques to help patients better manage the symptoms associated with lymphedema. The best results are achieved with early and continued treatment.
Pennsylvania Healthy Woman Program
dsf.health.state.pa.us/health/cwp/view.asp?A=174&Q=250967
(800) 215-7494
Free breast and cervical cancer screening.
www.PhillyHealthInfo.org
(215) 563-3737 ext. 221
A comprehensive directory of health services, events, and information for Bucks, Chester, Delaware, Montgomery and Philadelphia counties.
The Breathing Room Foundation, Inc.
www.breathingroomfoundation.org
(215) 887-2771
Our mission is to reach out to every family within a twenty-mile radius who has a member suffering from cancer. We recognize that a cancer diagnosis affects every aspect of a family’s life; emotional, physical, spiritual, and financial. We strive to provide a family with whatever it is that will allow them a bit of "breathing room" from their daily struggle against cancer. It is our hope that this will allow them to concentrate all of their efforts toward regaining their physical health.
www.lindacreed.org
(877) 99-CREED
The Linda Creed Breast Cancer Foundation empowers women and their families to talk about breast cancer, learn about it, and take control of their health and their lives. Our motto is we will be there…until breast cancer is not.
Wigs: Gary Charles and Associates
www.garycharlesalon.com
(215) 745-7967
8035 Oxford Ave.
Philadelphia, PA 19111
All wig types available including detachable bangs and ponytails upon order.
www.gayerhair.com
(215) 627-8888
421 North 7th Street, Ste. 555
Philadelphia, PA 19123
Wig types include synthetic and human hair; mainly custom wigs.
www.imageshairstudio.com
(215) 887-2284
740 Yorkway Place
Jenkintown, PA
Wig types include synthetic, human and custom.
Wigs: Maryanne Christopher Salon
www.maryannechristopher.com
(610) 359-9080
3618 Chapel Road
Newtown Square, PA
Hair care products and wig care.
www.millenniumhairanddayspa.com
(610) 649-4977
Wynnewood Shopping Center
Wynnewood, PA 19096
All wig types available.
Wigs: Russell Lauren Hair Designers
www.russelllauren.com
(484) 973-6406
1850 Collegeville Rd. Suite 103
Collegeville, PA 19426
Wig types include synthetic, human, custom and design.
Wigs: Women's International Support Environment
www.thewisecenter.com
(800) 870-6616
620 Cranbury Road, , Suite 211
East Brunswick, NJ 08816
Specializes in providing wigs for chemotherapy patients, patients with alopecia, those with male pattern baldness and the fashion-minded.
www.yellowdaffodils.com
(610) 692-7544
961 Downingtown Pike, Rt. 322
West Chester, PA 19380
Yellow Daffodils a Wig Salon & Post Mastectomy Boutique owned and staffed by cancer survivors. A shop providing the privacy, personal attention, and discretion in attending to your hair loss and post mastectomy needs.
Quality of Life
www.imagerebornfoundation.org
(435) 658-1715
Our mission is to provide no-cost healing retreats to women who have been diagnosed with breast cancer. The focus is on encouraging women to reclaim their sense of personal power and to strengthen them in their journey toward healing on all levels and living fully.
OncoLife Survivorship Care Plan
www.oncolife.org
While survivorship plans are extremely important, the amount of time they would require makes them unachievable for most oncology practices. OncoLink hopes to take steps to making this care plan a reality by developing a basic plan that survivors can review and discuss with their healthcare team.
Recommended Reading
7 Minutes! How to get the most from your doctor visit
by Marisa C. Weiss, MD
www.breastcancer.org/about_us/press_room/press_kit/seven_minutes.jsp
Provides expert advice to help you: find the right doctor, prepare for your appointment, say what you want to say, get answers, retain what the doctor tells you, advocate for a loved one and manage your relationship with your doctor. This book will help you get the best care possible.
A Survivor's Journey into the Sisterhood of Breast Cancer
by Diane Lane Chambers
www.ellexapress.citymax.com
Author Diane Lane Chambers weaves together her own story with breast cancer with those of five others also diagnosed. Through each of their eyes Chambers brings to life the complexities of this disease, from its
emotional and physical impact to its sometimeshidden historical, economic, political and environmental dimensions. Chambers shows how bonds of the sisterhood develop among survivors, bringing positivity into their lives.
After Shock: From Cancer Diagnosis to Healing
by Puja A.J. Thomson
www.aftershockfromcancer.com
A step-by-step guide to help you navigate your way. This book empowers cancer patients, families and caregivers, while offering practical suggestions and sharing encouraging stories. Highly recommended for all who participate in the healing process.
by Deanna Favre
www.tyndale.com/deannafavre
A memoir of breast cancer survivor Deanna Favre’s personal struggles with family deaths, her husband’s addiction and her fight against breast cancer. She tells how her love for God and her family brought her through the battles. An inspirational story for any family touched by breast cancer.
by the American Cancer Society
www.cancer.org/docroot/pub/pub_0.asp?from=fast
Using everyday terms, Breast Cancer Clear & Simple is designed to help women and their caregivers know what to expect. Created by leading medical authorities on breast cancer, this book answers more than 100 frequently asked questions about breast cancer in easy-to-understand question-and-answer format.
Breast Cancer Exposed and Becoming Whole
by Meg Wolff
www.megwolff.com/bookstore.html
Meg Wolff’s first book tells the story of her journey back to health. Also includes recommended readings, Healing Menu Plans and healthy recipes. Her second book shows the results of her mastectomy, while describing the connection between food choices and our health.
www.breastcancerstories.com
Online support community where those touched by breast cancer can share their experiences. All stories are searchable by location, age, type of breast cancer and type of treatment.
Butterfly Kisses and Wishes on Wings
by Ellen McVicker
www.butterflykissesbook.com
Read-along or listen-to book for children about cancer. The storyline is told through the eyes of a child and gives a clear, honest picture of cancer. Children and adults of all ages will find comfort in the book’s many messages.
by the American Cancer Society
www.cancer.org/docroot/pub/pub_0.asp?from=fast
Designed to alleviate the stress of the caregiver, this easy-to-read book provides sound advice on how to deal with symptoms and warning signs. Covers a variety of topics: patient well-being, treatments, chemotherapy, immunotherapy, sexuality and much more.
by Dave Balch
www.pink-link.org/resources.php?source=all&info_category_id=booksres6
A caregiver’s perspective on cancer, this book makes suggestions on how you can endure your own challenges.
Dreamwalk: A Survivor's Journey Through Breast Cancer
by Rachael Clearwater
www.dreamwalksurvivor.com
An account of one woman’s journey through breast cancer, from diagnosis through treatment. The book provides guidance and encouragement to other survivors and their loved ones.
Eating Well, Staying Well During and After Cancer
by the American Cancer Society
www.cancer.org/docroot/pub/pub_0.asp?from=fast
Experts explore what you should eat and what you should avoid in order to stay strong and benefit from treatment.
by Carole Carson
fromfat2fit.com
Author Carole Carson helped inspire over 1,000 ordinary people to lose nearly 4 tons in seven weeks, while rediscovering the joys of community. Carole’s book will help motivate you to start your own successful fitness program—and learn how to help others!
by Wendy Schlessel Harpham, MD
www.pink-link.org/resources.php?source=all&info_category_id=booksres9
A book for women, families and caregivers affected by breast cancer.
By Ruth Peltason
www.bespoke-books.com
I Am Not My Breast Cancer gathers the warm, loving, frank, and informed voices of more than 800 women—from every state in the nation and from continents as far away as Australia and Africa—who reveal their fears, trade advice, share experiences, and express their deepest, most intimate concerns.
by Debbie Leifert
www.pink-link.org/resources.php?source=all&info_category_id=booksres3
This book was written by six young breast cancer survivors for any young woman diagnosed with breast cancer. Together with their families, the women share their experiences, insight and encouragement.
by Kelly Corrigan
www.lulu.com/content/444305
Kelly Corrigan, creator of www.circusofcancer.org, wrote this light-hearted children’s picture book with her four-year-old daughter to comfort young children whose mothers have been diagnosed with cancer. Last Year, This Year empathizes with the many changes treatment brings while reminding both mother and child that, with each passing year, things will be more normal again.
Letters to Sydney: Everyday I am Killing Cancer
by Heather Jose
www.gobeyondtreatment.com
After her diagnosis of breast cancer, the author wrote this book of hope for those wanting to stand up and fight cancer. She speaks of the motivation that gave her the will to fight, while appreciating life.
by the American Cancer Society
www.cancer.org/docroot/pub/pub_0.asp?from=fast
Comprehensive guide to understanding and management that addresses: early detection, prevention, treatment options, how to cope with physical and emotional effects and insurance issues.
www.myselftogetheragain.org
The Myself: Together Again story of delayed breast reconstruction following double mastectomy surgery was inspired by a woman who agreed to have the process photographed so that other young women like her could get an idea of what to expect.
by Beverlye Hyman Fead and Tessa Mae Hamermesh
Published by the American Cancer Society
www.cancer.org/books4nana
This loving conversation between a grandmother and a granddaughter tackles the tough questions about cancer in a kid-friendly but honest way. Parents and grandparents, as well as teachers and social workers, will find this book a frank but gentle tool for teaching inquiring minds and comforting tender hearts.
by Patti Balwanz, Kim Carlos, Jennifer Johnson and Jana Peters
www.nordiesatnoon.com
Shares the personal stories of four young women diagnosed with breast cancer at the age of 30 or younger. Encourages women to be proactive with their health and to support and educate one another.
by Diane Lane Chambers
www.ellexapress.citymax.com
Author, Diane Lane Chambers weaves together her own story with breast cancer with those of five others also diagnosed. Through each of their eyes Chambers brings to life the complexities of this disease, from its emotional and physical impact to its sometimes hidden historical, economic, political, and environmental dimensions. Chambers shows how bonds of the sisterhood develop among survivors, ironically bringing a great deal that is positive into their lives.
By Jackson Hunsicker
www.turningheadsthebook.com
In an effort to challenge our perception of what cancer looks like, fifty-nine well-known photographers have donated their time to take pictures of women bald from chemotherapy.
Reconstruction
www.breastreconstruction.org/about.html
(516)708-4824
BreastReconstruction.org was created to help empower women to make informed choices about breast reconstruction.
www.breastreconstructionmatters.com
The goal of this Web site is to provide women with the information and confidence they need to approach their surgeons with the right questions.
www.myhopechest.org
By enabling women who desire reconstruction to have it, My Hope Chest’s goal is to return these deserving women to a normal life with feelings of "hope", self-worth and completeness.
Resource Directories & Healthcare Search Engines
www.breastcancer-infoguide.com
www.breastcancerdirectory.com
www.breastcancerdirectory.info
Provides information and treatment options for male and female with sections on self exams, mammograms, mastectomy surgeries and more.
www.breastcancerdirectory1.com
A directory of websites related to breast cancer.
www.cancernetwork.com
Cancernetwork.com supplies up-to-date oncology/hematology news and articles, including extensive avenues for earning CME online, direct access to e-textbooks and guides filled with current helpful information. CMPMedica is a leading healthcare media company providing news and education to communities of general practitioners, specialist doctors, pharmacists, nurses and patients across 26 countries.
www.connectedforcancer.com
www.justbreastcancer.com
Articles, information and resources on breast cancer.
www.oncologystat.com
OncologySTAT integrates a multitude of professional cancer information sources, such as peer-reviewed research, news and regulatory updates, a professional drug monograph and interactions database, chemotherapy regimens, and conference coverage into one online destination. Information and educational materials are delivered across multiple media formats: text, audio, video, interactive, user-generated forums, etc. to gain immediate integrated access to the latest evidence-based research, news, treatment, and decision support information.
OncologySTAT: Breast Cancer Resources
www.oncologystat.com/cancer-types/breast-cancer.html
www.vivaprime.com/health/conditions-and-diseases/breast-cancer.aspx
Retreats
Breast Cancer Recovery Foundation, Inc.
www.bcrecovery.org
(888) 821-1140
Provide environments for women to heal emotionally, spiritually and physically from breast cancer. BCRF’s flagship program, Infinite Boundaries, is a four-day wellness program for women who have experienced breast cancer. Designed by breast cancer survivors for breast cancer survivors, each retreat features a unique mixture of healing approaches: uplifting discussions, creative arts and outdoor adventures.
www.womensflyfishing.net/cfr2.htm
(888) 553-3500
Casting for Recovery is a nationally recognized not for profit program established in 1996. It provides an opportunity for women whose lives have been profoundly affected by breast cancer to experience physical, emotional, and spiritual healing through retreats in a beautiful natural setting; and learn fly-fishing, a sport for life.
www.expeditioninspiration.org
(208) 726-6456
The purpose of The Expedition Inspiration Fund for Breast Cancer Research is to raise awareness and monies to benefit breast cancer research through research project funding, public education, and patient support. Additionally, through organized and sponsored outdoor endeavors, Expedition Inspiration promotes the physical and mental well being of breast cancer survivors.
www.harmonyhill.org
(360) 898-2363
Harmony Hill’s cancer retreats are weekend residential programs that help those facing cancer, and their loved ones, cope with the physical, emotional, and spiritual challenges of cancer.
www.lifebeyondcancer.org
Life Beyond Cancer is a four-day retreat for women cancer survivors focusing on issues related to wellness after cancer treatment, along with self and community advocacy. The retreat, held each December, is free of charge.
Smith Farm Center for the Healing Arts Cancer Help Program
www.smithfarm.com
(202) 483-8600
Smith Farm Center for Healing and the Arts is a Washington, DC-based nonprofit health, education and creative arts organization that serves individuals, families and communities affected by cancer and other serious illness. Cancer Help Program Residential Retreats are one of the foundations of their work. Nestled in a lodge setting amidst the rolling hills just beyond Washington DC, participants and caregivers explore, educate, nourish, renew and reclaim their inner resources for healing.
www.survivorsretreat.com
This website contains information on retreats, spa opportunities, labyrinths, workshops and conferences to help you move toward survivorship and recovery.
The Women's Wilderness Institute
www.womenswilderness.org
(303) 938-9191
In the spirit of supporting women who are facing a bump in the trail, The Women's Wilderness Institute offers courses especially designed to use the healing power of the natural world. The Transitions Program allows women who are actively working on their personal growth or recovery to gain the courage and commitment to take the next step forward. Courses include camping, climbing, expressive arts, and journaling, and are designed to accommodate a wide range of physical abilities and outdoor experience. Financial aid is available for these courses.
Side Effects
Alliance of State Pain Initiatives
www.aspi.wisc.edu
(608)265-4013
Formerly called the American Alliance of Cancer Pain Initiatives, the Alliance of State Pain Initiatives is a national network of interdisciplinary, state-based organizations dedicated to improving pain management. The site includes a downloadable brochure on cancer pain and links to resources on pain management.
www.painfoundation.org
(888)615-PAIN
The American Pain Foundation serves people with pain through information, advocacy, and support. APF's mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research and advocating to remove barriers and increase access to effective pain management. The website contains a "spotlight on cancer pain" section that provides information, coping strategies and tools to help you and your caregivers understand the basics of pain management and better communicate with your doctors.
www.lymphedemalighthouse.org
(770) 442-1317
Through group meetings, newsletters, educational/awareness events, publicity, participation in medical events and fundraisers, such as the Walk for Lymphedema, the LLN promotes interest in a serious medical condition.
www.lymphnotes.com
An online information resource and support group for those with lymphedema and for the family, friends, and therapists who care for them.
lymphedivas.com
(866) 411-DIVA
LympheDIVAs create medically correct compression apparel for women with post-breast cancer lymphedema. The founders want to inspire women cancer survivors to feel beautiful, strong, and confident.
Lymphology Association of North America
www.clt-lana.org
(773)756-8971
The purpose of this organization is to promote standards for management of individuals with Lymphedema and or related disorders, to establish and maintain certification for medical professions who provide such services, and to promote the awareness and science of lymphology. You can search for certified specialists by state.
www.lymphnet.org
(800)541-3259
The National Lymphedema Network (NLN) is an internationally recognized non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN is supported by tax-deductible donations and is a driving force behind the movement in the U.S. to standardize quality treatment for lymphedema patients nationwide. In addition, the NLN supports research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.
www.nwlymphedemacenter.org
(206)575-7775
The Northwest Lymphedema Center is a nonprofit organization founded in 1993 by JoAnn Rovig, lymphedema specialist, to educate lymphedema sufferers and help them meet the challenges of this condition through self-massage classes, instructional videos, and other educational materials.
Survivorship
www.journeyforward.org
707-636-5900 (9AM-5PM, PST/PDT)
Journey Forward is a new program designed for doctors and their patients who have recently completed active treatment for cancer. This program was created by a unique collaboration of organizations with the common goal of improving survivorship care.
Testing
www.oncotypedx.com
(866)ONCOTYPE
This site features information on Oncotype DX™, a breast cancer test from Genomic Health that can help individualize breast cancer treatment. Oncotype DX predicts the likelihood of breast cancer recurrence in women with newly diagnosed, early stage invasive breast cancer, and assesses the benefit from certain types of chemotherapy. This information can help doctors tailor breast cancer treatment on an individual basis.
Treatments
www.chemocare.com
This website provides the latest information about chemotherapy, chemo side effects and chemotherapy drug information to patients and their families, caregivers and friends.
www.chemochicks.com
(310) 439-1490
Empowering women with cancer and their loved ones with style, humor and dignity.
www.rtanswers.org
(800)962-7876
RT Answers was created by the American Society for Therapeutic Radiology and Oncology to explain how radiation therapy is used to treat cancer.
Triple-Negative Breast Cancer
Triple Negative Breast Cancer Foundation
www.tnbcfoundation.org
This newly created organization seeks to ignite interest in the study of triple-negative (ER-/PR-/HER2-) breast cancer among researchers, physicians, educators and scientists; support professionals seeking to identify the causes and discover new and effective treatment options; and increase public awareness and support of this type of breast cancer.
www.triplepink.org
Triple Pink Foundation, Inc. is dedicated to educating the public about triple-negative breast cancer, increasing awareness of the disproportionate impact that this disease has in the minority community, encouraging women to take responsibility for their breast health by performing breast self exams and garnering financial support for research to find a targeted therapy for triple-negative breast cancer.
Workplace, Legal and Insurance Resources
www.cancerandcareers.org
Cancer and Careers is committed to changing the face of cancer in the workplace by providing a comprehensive website, free publications, and a series of support groups and educational seminars for employees with cancer.
www.disabilityrightslegalcenter.org
(866) THE-CLRC
Provides information on cancer-related legal issues to survivors, their families, friends, employers, and those who provide services to them.
Foundation for Health Coverage Education
www.coverageforall.org
(800) 234-1317
The mission of the FHCE is to simplify public and private health insurance eligibility information in order to help more people access coverage.
www.jan.wvu.edu
(800) 526-7234
A service of the Office of Disability Employment Policy (ODEP) of the U.S. Department of Labor. JAN is one of several ODEP projects. JAN's mission is to facilitate the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members and other interested parties with information on job accommodations, self-employment and small business opportunities and related subjects.
lawhelp.org
LawHelp helps low and moderate income people find free legal aid programs in their communities, and answers to questions about their legal rights.
Legal Clinic for the Disabled, Inc.
www.legalclinicforthedisabled.org
(215)587-3350
The Legal Clinic for the Disabled is a 501(c)(3) nonprofit corporation with offices at Magee Rehabilitation Hospital. They provide free legal services to low-income people with physical disabilities in Philadelphia, Bucks, Chester, Delaware and Montgomery Counties, Pennsylvania. Of particular interest, their Law & Health Initiative for Cancer Survivors (a program funded by the Lance Armstrong Foundation) provides free legal representation and advice to low-income cancer survivors and outreach to medical providers and caregivers on legal issues affecting the health, safety, families and well-being of cancer survivors, including health care coverage, public and private disability benefits, family law, powers of attorney, wills, living wills, housing and employment.
www.kintera.org/TR.asp?ID=M716160108683055327189765
(512)236-8820
The Lance Armstrong Foundation (LAF) and Benefit Alliance recently launched the LIVESTRONG Benefit Solution - an optional supplementary healthcare plan that will benefit people affected by cancer.
www.mymedicarematters.org
This website, sponsored by the National Council on the Aging (NCOA) and the Access to Benefits Coalition (ABC), is designed to help individuals learn more about the Medicare Prescription Drug Coverage.
www.patientadvocate.org
(800)532-5274
Patient Advocate Foundation is a national nonprofit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
www.healthwellfoundation.org
800-675-8416
The HealthWell Foundation® is a 501(c)(3) non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses. The Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs, including prescription drug coinsurance, copayments, and deductibles; health insurance premiums; and other selected out-of-pocket healthcare costs.
The National Partnership for Women & Families
www.nationalpartnership.org
(202) 986-2600
The National Partnership for Women & Families is a nonprofit, nonpartisan organization that uses public education and advocacy to promote fairness in the workplace, quality health care, and policies that help women and men meet the dual demands of work and family.
Young Women Affected by Breast Cancer
Annual Conference for Young Women Affected by Breast Cancer
www.youngsurvivorsconference.org
(610) 645-4567 (LBBC) / (877) YSC-1011 (YSC)
Living Beyond Breast Cancer and the Young Survival Coalition’s Annual Conference for Young Women Affected by Breast Cancer is the only international event focused on the unique needs and issues faced by women diagnosed before age 45. Created by young women for young women and their caregivers, the conference has grown to one of the largest meetings in the world for women with a history of breast cancer! For more information, visit the website dedicated to the conference or call LBBC or the YSC.
www.breastcancermoms.com
A comprehensive resource to meet the parenting needs of mothers with breast cancer. Contains content from current research on parenting, as well as interviews with breast cancer moms and their friends, family, and children.
www.bebrightpink.org
Bright Pink is a unique resource providing support to young women who are at high risk for breast and ovarian cancer.
Cooper University Hospital | Cancer and Pregnancy
www.cooperhealth.org/content/pregnancyandcancer.htm
(800)8-COOPER
Information for pregnant women who find out they have cancer from Cooper University Hospital, a provider of comprehensive health services, medical education and clinical research in Southern New Jersey and the Delaware Valley.
www.fertilehope.org
(888)994-HOPE
Fertile Hope is a national nonprofit organization dedicated to providing reproductive information, support and hope to patients whose medical treatments present the risk of infertility.
www.imtooyoungforthis.org
(877)735-4673
A resource portal for young adults with cancer.
Marjorie E. Korff PACT Program
www.mghpact.org/home.php
(617)724-7272
The Marjorie E. Korff PACT Program is a unique parenting program developed at the Massachusetts General Hospital Cancer Center to address the common challenges and needs of parents with cancer.
www.planetcancer.org
(512) 452-9010
The Planet Cancer Web site provides a unique voice for young adults who have been affected by cancer: fresh and irreverent, but always honest. The site offers information, connections, entertainment and support. The heart of the site is the Forum, a thriving online community where users find and communicate with other young adults around the world about what's on their minds – from death or fertility issues to dumb things people say.
www.pregnantwithcancer.org
(800)743-4471
Pregnant with Cancer connects women who are pregnant and newly diagnosed with other women who have gone through similar experiences.
RESOLVE: The National Infertility Association
www.resolve.org
(703) 556-7172
The mission of RESOLVE is to provide timely, compassionate support and information to people who are experiencing infertility and to increase awareness of infertility issues through public education and advocacy.
www.sharsheret.org
(866)474-2774
Sharsheret provides culturally sensitive support to young Jewish women who are newly diagnosed with breast cancer as well as to those facing the risk of developing breast cancer, and offers related resources for Jewish communities and healthcare organizations.
www.myoncofertility.org
(866) 708-FERT
www.thesamfund.org
(866)439-9365
The SAMFund is a unique non-profit organization created to assist young adult survivors of cancer with a successful transition into their post-treatment life, by providing financial support through the distribution of grants and scholarships.
www.thrivetogether.org
(888)276-5689
Thrive is dedicated to providing support, services, and education to young women in the greater Boston area who have been diagnosed with breast cancer.
Ulman Fund for Young Adults with Cancer
www.ulmanfund.org
(888)393-FUND
The Ulman Fund provides support programs, education and resources free of charge to benefit young adults, families and friends affected by cancer and to promote awareness and prevention of cancer.
www.youngsurvival.org
(877)YSC-1011
The Young Survival Coalition is the only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer.
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