Julia Maues was diagnosed with HER2-positive breast cancer while pregnant at age 29. After her son was born, she found out the cancer was metastatic and had spread to her brain, liver and bones. She’s been in active treatment since 2013.
For the first few years after her metastatic diagnosis Julia did not get involved in support groups or advocacy work. Then, her oncologist asked her to speak at a fundraiser for his research. She accepted, and realized the power of sharing her story. “Being able to help other patients going through similar struggles and to help researchers better work for us patients has been extremely rewarding,” she says. “As I have gotten more involved with breast cancer advocacy I have become more aware and outspoken about the struggles that the metastatic breast cancer community, in particular, faces.”
Julia is a member of the 2018 Living Beyond Breast Cancer Hear My Voice class of volunteers. She also participates as an advocate with Georgetown Breast Cancer Advocates, a group at Georgetown University’s Lombardi Comprehensive Cancer Center, in Washington, D.C., that works with researchers, clinicians and other stakeholders to ensure that research is patient-centered, innovative and accessible.
In addition, Julia has served on American Society of Clinical Oncology (ASCO) guideline panels, as a reviewer for the Department of Defense Breast Cancer Research Program, and is an active member of two local support groups and closed Facebook groups for people with metastatic breast cancer. In December 2018, Julia will attend the San Antonio Breast Cancer Symposium through the Alamo Breast Cancer Foundation Scholarship Program.