Joan Mancuso has been living with metastatic breast cancer since 2007. She was originally diagnosed with stage II disease in 2003. As a volunteer at Living Beyond Breast Cancer she has represented LBBC at a survivors’ day event and at a breast cancer screening awareness forum. She was also a member of an LBBC panel about reaching out through social media to those living with metastatic breast cancer.
Joan also volunteers for SHARE, a nonprofit that supports women affected by breast and ovarian cancers. For SHARE, she facilitates a national telephone support group twice a month for people with metastatic breast cancer. She also contributes stories about scientific research and breast cancer care in advanced disease to SHARE’s Mets Matters newsletter.
As a patient advocate, Joan is a consumer reviewer for the Department of Defense Breast Cancer Research Program and participated in a radio media tour about metastatic breast cancer during Breast Cancer Awareness Month. Joan is also an advocate in a breast cancer research group at Penn Medicine’s Abramson Cancer Center in Philadelphia, She represents the Abramson group at the Translational Breast Cancer Research Consortium for phase II clinical trials.
Joan also provides input on scientific grant proposals at Columbia University’s Institute for Cancer Genetics and at Memorial Sloan Kettering Cancer Center. She is an affiliate member of the American Association for Cancer Research and a graduate of their Scientist<–>Survivor Program, as well as a patient advocate member of the American Society of Clinical Oncology (ASCO).