Alicia C. Staley
Alicia Staley is the senior director of patient engagement for mHealth at Medidata. She has over 20 years of experience in software design and information systems management and works to infuse the patient perspective throughout the product development lifecycle and help engage patients in novel ways.
Alicia is also a three-time cancer survivor, first diagnosed with Hodgkin’s disease as a sophomore during college. Over the past 10 years, she's applied her engineering background to improve the patient experience for those dealing with cancer. With an extensive network of patient advocates and nonprofit organizations, she collaborates with a wide range of stakeholders to help improve processes and policies that impact patient care and clinical trials. She’s co-led research studies on how patients share information in online forums and seek out clinical trial opportunities.
An early adopter of social media, she co-founded #BCSM, which attracts over 250 global participants each week to its scheduled online discussions. Since its launch in July 2011, #BCSM has been showcased at SXSW in 2013, 2014, 2015, and again in 2017. This foundational online social media support channel is recognized as the gold standard for disease-specific social media networks. Prior to joining Medidata, Alicia worked at Cure Forward and Science 37 leading their patient recruitment and engagement initiatives to help advance clinical research. As a champion of patient advocacy and engagement, she understands the critical issues facing patients seeking to engage in clinical research. With a keen focus on improving access to clinical trials, Alicia is passionate about making a difference for patients searching for information about clinical trials.