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Living Beyond Breast Cancer’s advocacy programs focus on positively impacting the quality of life for all people affected by breast cancer. We comment on legislation, policies, issues and concerns that influence quality of life for those with early-stage and metastatic breast cancer and those living long-term with a medical history of breast cancer.

As a national nonprofit organization representing more than 50,000 people, we have a unique perspective on the concerns of individuals facing and managing breast cancer. We strive for the openness and collaborative spirit befitting the diversity of views our constituents hold.

Recent Advocacy Efforts

In 2010 and 2011, Living Beyond Breast Cancer worked with providers, professionals and women affected by breast cancer to make statements on:

  • Prospective Model of Care for Breast Cancer Rehabilitation. former LBBC board member Valerie Kraus, a physical therapist who has had breast cancer, contributed professional advice to a roundtable meeting to discuss the creation of a model of provider support for physical rehabilitation before, during and after breast cancer treatment. The meeting, held at the headquarters of the American Cancer Society February 24-25, 2011, could result in published recommendations that will assist women coping with breast cancer.
  • The EARLY Act. As part of our efforts to assist young women with breast cancer, LBBC issued a joint statement with Young Survival Coalition, Breast Cancer Network of Strength and the Susan G. Komen for the Cure Advocacy Alliance. This legislation was signed into law in March 2010 as part of the Patient Protection and Affordable Care Act (the healthcare reform law). Its goals are to educate young women about risks for developing breast cancer, and to grow awareness among providers who treat premenopausal women.

Our Advocacy Advisory Committee

Before we comment on an issue, Living Beyond Breast Cancer consults a breast cancer Advocacy Advisory Committee made up of:

  • A public policy specialist

In addition to the ten voting members of our committee, LBBC also consults several nonvoting members who advise us in their areas of expertise.

For more information about or to comment upon our policy initiatives, please contact our educational programs department.